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bladderandbowelfoundation.org 

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home site map contact us alpha-1 antitrypsin deficiency support — main menu — about us - about alpha-1 awareness - our booklets - facebook – our group - helping research - newsletters - - subscribe to our newsletters - - old newsletters - alpha1 scotland alpha-1 - diagnosis - - understanding a1at/aatd - - who should be tested? - - videos explaining the condition - treatment - - treatment & therapies - - - inhalers - - - nebulisers - - - antibiotics - - - healthy eating - - - lifestyle - - - pulmonary rehabilitation - - - replacement therapy - - - surgical options - - quality standard of care - - expert recommendations children - children with alpha-1 - guide for schools info - glossary - links - neswletters - - subscribe to our newsletters - - old newsletters - our booklets - useful information - - natural cleaning products you can make for your home support us - car stickers - collection boxes & tins - - request a collection box or tin - - how to send us the money you have collected - - - money from a collection box - - - money from a collection tin - how to send us donations - just giving - - just giving – how to setup a page - - just giving leader board - fundraising information - completed fundraising events - - 2018 - - - james balson – 7th april 2018 – prague half marathon - - - louise balson – 7th april 2018 – prague half marathon - - - stephanie kimble – 15th march 2018 – milton keynes festival of running 5k - - 2017 - - - paul amos – 14th may 2017 – tandem skydive - - - cori ruktanonchai ~ 3rd june 2017 – stockholm marathon - - - paul seager – 17th june 2017 – 45 fell walk - - - british 10k run – 9th july 2017 - - - sharon simpson – 2nd september 2017 – 25k trek fest (peak district) - - - matt rowley – runner - - - james balson – 15th october 2017 – amsterdam half marathon - - - katie rigby – 28th october 2017 – kernow destroyer shopping contact us british 10k run 2018 (free tickets) 2018 celebration day – ticket reservation about us about alpha-1 awareness our booklets facebook – our group helping research newsletters subscribe to our newsletters old newsletters alpha1 scotland alpha-1 diagnosis understanding a1at/aatd who should be tested? videos explaining the condition treatment treatment & therapies inhalers nebulisers antibiotics healthy eating lifestyle pulmonary rehabilitation replacement therapy surgical options quality standard of care expert recommendations children children with alpha-1 guide for schools info glossary links neswletters subscribe to our newsletters old newsletters our booklets useful information natural cleaning products you can make for your home support us car stickers collection boxes & tins request a collection box or tin how to send us the money you have collected money from a collection box money from a collection tin how to send us donations just giving just giving – how to setup a page just giving leader board fundraising information completed fundraising events 2018 james balson – 7th april 2018 – prague half marathon louise balson – 7th april 2018 – prague half marathon stephanie kimble – 15th march 2018 – milton keynes festival of running 5k 2017 paul amos – 14th may 2017 – tandem skydive cori ruktanonchai ~ 3rd june 2017 – stockholm marathon paul seager – 17th june 2017 – 45 fell walk british 10k run – 9th july 2017 sharon simpson – 2nd september 2017 – 25k trek fest (peak district) matt rowley – runner james balson – 15th october 2017 – amsterdam half marathon katie rigby – 28th october 2017 – kernow destroyer shopping contact us british 10k run 2018 (free tickets) 2018 celebration day – ticket reservation join our facebook family why not join our facebook alpha family. we help to support each other. help raise funds & awareness get a collection box or tin out there and help raise funds as well as the needed awareness. donations to research a minimum of 10% of all our donations go directly to the research into a cure and also to the research to better understanding the condition. alpha-1 children if you are the parent of an alpha child, you will be sure to find our books for alpha children a great help in explaining the condition. creating connections we attend meetings and conferences about alpha-1, rare diseases and other areas that are of interest to our members. understand heredity alpha-1 is a heredity condition. if 1 person is affected in your family, there is a good chance that others will be too. early diagnosis early diagnosis is essential for alphas, since it allows them to make the lifestyle changes that can minimise permanent damage to the lungs and the liver. welcome to alpha-1 awareness, a uk charity that supports people with aatd aatd or alpha-1 antitrypsin deficiency is a lack of the protein alpha-1 antitrypsin (aat) which is produced in the liver. the main job of aat is to protect the lungs. a deficiency can lead to life-threatening lung and/or liver disease. the first signs and symptoms of lung disease caused by alpha-1 antitrypsin deficiency usually appear between ages 20 and 50. the symptoms are: shortness of breath following mild activity reduced ability to exercise wheezing about ten percent of infants with the deficiency show signs of liver damage at birth. fifteen percent of adult alphas also develop liver disease. only a small fraction of alpha-1 antitrypsin deficient patients in the united kingdom are aware of the causes of their condition. our charity is run by non-paid volunteers who all are either affected by alpha-1 or have a family member who is. we all have a connection to alpha-1 and this isn’t our day job. we have a real passion for the charity and for supporting people who are affected, their families and friends. this website was created so that people can learn more about alpha-1 and how to get support. we produce our own booklets which people can download and view digitally ( click here ) and even request that a set be sent to them in the post for free. we have a private facebook group where we help to support people in a safe environment. if you would prefer one on one support, then you can email us directly on ‘ [email protected] ‘ or use our contacts us form . we care, we want to help those affected, their families and their friends. we are also proud to be the only uk charity that is donating money to go directly to the research of a cure. fund raisers we would like to thank all those that raise funds for us, without you, we would not have a charity & we would not be able to support those affected with alpha-1 and their families. please help the below people by reading their stories, if you are able, please make a donation. gemma vivian ~ london marathon ~ 22nd april 2018 thank you so much gemma for doing this in our name. british 10k run (london) ~ 15th july 2018 it is that time of year again where we are planning for the london 10k run. we have tickets to give away for free! all we ask is that you create a just giving page, link it to our charity and agree to get a minimum of £200 in donations. to view more information about the race as well as apply for a ticket, click here . roisin, sinead & niamh in niamh’s own words: “as you are aware i have two sets of twins, caoimhe and cara aged two and aodhán and saoirse aged 3 months. we recently found out that all four of my beautiful children have alpha-1. i didn’t even know this lifelong illness existed until they were born! sadly it affects their liver and lungs. currently all four are doing really well and are defying the odds. however, having the illness means that they may need a liver transplant in their life. initially it only affects the liver, but during adolescence and adulthood it starts to affect their lungs. this will lead to hospitalisation and they will have to live a very safe lifestyle. if you know me then you know i am an absolute slob who enjoys nothing more than sneaking a cuddle nap in with all four of the clan! i’m running this 10k not only to raise awareness of

URL analysis for alpha1awareness.org.uk

http://www.alpha1.uk/just-giving-leader-board/
http://www.alpha1.uk/page/4/
http://www.alpha1.uk/newsletters/
http://www.alpha1.uk/treatment/pulmonary-rehabilitation/
http://www.alpha1.uk/treatment/surgery/
http://www.alpha1.uk/fundraising-events-completed/2018-2/stephanie-kimble-15th-march-2018-milton-keynes-festival-of-running-5k/
http://www.alpha1.uk/car-sticker/
http://www.alpha1.uk/booklets/
http://www.alpha1.uk/portfolio/alphanets-ceo-robert-barrett-to-retire-new-ceo-named/
http://www.alpha1.uk/just-giving-setup-page/
http://www.alpha1.uk/about/
http://www.alpha1.uk/fundraising-events-completed/2017-2/matt-rowley-runner/
http://www.alpha1.uk/fundraising-events-completed/2018-2/james-balson-7th-april-2018-prague-half-marathon/
http://www.alpha1.uk/fundraising-events-completed/2017-2/katie-rigby-28th-october-2017-kernow-destroyer/
http://www.alpha1.uk/fundraising-events-completed/2017-2/james-balson-15th-october-2017-amsterdam-half-marathon/
alpha1awareness.org.uk

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You may not access the .uk WHOIS or use any data from it except as permitted
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  NS2.DOMAINMONSTER.COM 109.68.33.102

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